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AiLing: Hey Shirley, I was googling on Turner's Syndrome and I came across your blog. You see, I am a 26 year old woman with Turner's Syndrome. At once glance, you wouldn't believe that I'm 26, as I look more like 16. And I think I act like a teenager too, instead of an adult. Is this normal in Turner's Syndrome people? Also, I have difficulty in managing my time and tasks, I tend to do things slowly and learn things much slower than others. Is this normal too? I really wanna know. Thanks so much in adv
Shirley Hiter: As well thank you for your kind words about the Site.
Shirley Hiter: Just be there to listen w/o judgement. Pls alos let her know about the blog and Site.
Zoya: Hey Shirley! its awesome uve strted this site. Im sure many women can realate to you. Although I do not have TS, I know a young girl who does. She is going thru a very tough time in school. She is devastated to have heard that infertility is a big issue because she loves children. I hope I can say some thing to help her...especially with her problems at school. She gets picked on alot just because shes a bit different. Any ideas on what I can say to provide her some support?
Shirley: Hey Hon - thank yuo so much for sharing. Please send an email w/ contact info. Id love to talk to you.
Amy: Hi Shirley,I am a 26 year old woman with turner's syndrome. I have recently been having trouble at work. I can't seem to interpret and prioritize my tasks very well. Have any other TS women you have talked to struggled with this??? I am getting fed up with myself and I would greatly appriciate your feedback.
Shirley: Thank you so much!
Emily: Shirley, I took a peek at your book. It looks really good. You have a customer. Love, Emily
Shirley: Happy Belated BDay! I turn the big 37 in November. :) Thank you for your post. Please keep in touch.
Dawn: Shirley I to have turners syndrome. I havent had many health problems. Ifell very fortunate. I understand how you fell self concunise , Idont do well with math. I had a heart condition that i had taken care of when I was very young. Going through school I was picked on because of my size I am 4 foot 11 and about 130 pounds. I will be 40 on July 20,2007. It is wonderfull that they have a way for people to talk and have some support from others with the same condition that can relate to what there
Shirley: Tks Emily :) Luv ya, too!
Emily: I have odd looking toes as well. Most peope just say they are cute. I bet nobody even noticed. We come in all shapes and sizes. The alternative would be sooooo boring. Love Ya, Shirley.
Shirley: 3rd times a charm lol
Shirley: Oops! Had put URL in wrong
Shirley: Thank you so much :)
Emily: Glad to hear your good health news. Love ya!
Shirley : TKs so much - great to meet you too!
Rosemary K.: I am glad to meet a sweet friend like you. I enjoy chatting, and Turners women make special friends.Thanks Shirley

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Saturday, December 5th 2009

12:58 PM

Calories and other Stuff

Checking in after a Very long time. Been busy w/ mundane rl stuff. Hoping to post more about T.S. - I honestly update my writing blog a little more. If you care to check in out, its at: http://creatorbornonline.com, and the T.S. site is: http://turnersyndromeplace.com - links to twitter and fb can be found on both.

Food issues are kicking in again, and Im trying to make sense of them. I Know there are issues b/c of having T.S. and of course the other zillion things in my life that make me 'crazy and confused'. They just manifest themselves in my diet, exercise, etc ... so I become hungry, cranky and a bit worried. So, ya ...

Its hard to know proper weight, etc for your height, when your heights not on an adult chart. Heh!

Anyway, b/f I babble even more ...
Ciao!

1 Stuff Spoken / Speak!

Tuesday, June 9th 2009

1:35 PM

Contemplative

Been kinda reflective lately. The whole aging and T.S. thing is starting to hit me. Not necessarily worred, but ... maybe its just the fact that Im about to turn 39. There are just so many things I have to keep an eye on. The heart, the lungs, the hormones, the thyroid, the bone density, the hearing, the eyesight ... yeah you get the picture. I mean, Im actually over middle age now for someone w/ T.S.??? Weird. Guess Im changing a few things to ensure Im controlling at least what I can health wise.

On a brighter note: Hah! The book still doing OK on amazon. Couple things I want to do to 'tweak' it.

Please check me out on:
http://myspace.com/storygirl70
http://livejournal.com/storygirl_70
http://twitter.com/storygirl70
0 Stuff Spoken / Speak!

Friday, March 6th 2009

12:15 PM

Grumblings and Mutterings

OMG somehow, this is my 3rd attempt at this entry.  Gah!

Anyway.  Hello!    I know its been awhile, and I apologize for not blogging sooner.  I update my writing Site alot more.  For some reason I keep em separate.  Anyone care to psycho analyze and let me know why?  lol

Just been feeling really - rushed - is the best word.  So much I want to accomplish, and like, yesterday.  Keeping up w/ my blogs, my writing, the websites, and of course personal time, and time w/the hubby, and what I want to do at work.... its annoying that I frustrate easily, and overwhelm easily.  It sounds like alot, but I know, deep down, my plate isnt That full, so to speak.  Women, I think are suppose to be everything and do it all, And do it w/ lipstick and a miniskirt on.  Personally I blame it on feminism.  Hah!  Part of me wishes for the 50s (only a part for obvious reason) - that way I can play housewise, and write all day. 

Anyway, Im whining, and I know this is nothing I probably havent griped about b/f.

And pls dont forget to check for Chat Times!  Tomorrow around 2pm from the WebSite.

P.S.  Contest on Lulu.com - pls if you havent, check out my autobio and or short story collection.  If I win, will donate $100 to a T.S Society Chapter.

0 Stuff Spoken / Speak!

Thursday, December 18th 2008

12:37 PM

Life

Rene Joseph Vallee (Brazeau)

1929 / 2008

 

My Father passed last Thursday night, Friday morning - Fri the 12th.  Its hard even to know what to say - but I think it might help to write it down, I mean, this is a journal afterall. 

Yesterday was my 1st day back to work.  Family flew me into town last Monday night, Tues morning.  I guess the 8th / 9th.  As you can imagine, the last week and a-half has been a blur.  Im so grateful that I at least got to say goodbye.  Being 700 miles from home, thats always been my biggest fear. 

He didnt want any kinda viewing, wake, funeral.  We had ppl coming by the house though, offering condolences etc.   Seen family that I havent in years upon years.  Estranged is the wrong word, but, a couple sibling that we havent really been in too much contact w/.  Were saying it was his final accomplishment - bringing the family back together. 

Its hard, but everyone says itll get a little easier.  I dont think no matter how you prepare (which no one was - this was a shock to put it midly) you can never really be - its still going to be devastating.

My husband reminds me that he was a good man, that lead a good life, and hes no longer in pain, and is in a better place.  What more could we ask for, right? Other than the obvious.

P.S.  Without being presumptious I hope, but for anyone who might be interested, were advising that if a donation is made, its to either a heart and stroke foundation, or a war veterans foundation - my father was a Korean War Vet, and had taken a stroke in - goodness, 1980 I think.

Thank you, sincerely.

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Saturday, November 1st 2008

4:55 PM

Happy Halloween, BOO !

It was a quiet evening, but, nice.  I added a pic of our 1st pumpkin carving.  While we waited for the 'rugrats' we got caught up w/ our TruBlood -  it took a bit, but, we really got into the series.  Its great to have a series that we Both like and can enjoy together.  We cant miss House either, each week.  Need the 6th season of charm on dvd  muahaha

Big Things in Little Packages is officially on Amazon now, same w/ the fantasy short story collection  - you can check it out just by searching my name - Shirley Vallee Hiter.

Work is really draining.  Im seeing a Chiro now. once a week, trying to 'destress'.  My shoulders become one great big knot by the end of the week.  Anyone have any other ideas for relaxation?  hehe  I want to buy a half decent kettle, and start drinking some calming tea or something.

Cashing in our circutcityrewards - i Need a new webcam.  Harry doesnt mind me using them for it, which is cool. Once i went to vista, the one i have no longer works.  Meh!

Outa here for now.

buh bye!

 

 

0 Stuff Spoken / Speak!

Monday, October 13th 2008

10:40 AM

Happy TurkeyDay, Eh !

Yay!  Im in Cornwall!  I wasnt thinking Id be able to get here until April or May of 2009, but my beautiful Sister and brother-in-law gave me their airline miles.  I was able to fly for like a quarter of the cost, so made it feasible.  The first year in your first home can be brutal.  Heh! 

My niece and newphew took time out to come and see me, which meant the world to me.  Theyve turned into such amazing adults.  Gawd, Im getting old.  Hah!  Also, I got to see a cousin (Anna) Thank you cuz, over and over, thank you!    and a couple aunts, and Tracy!  It was sooo wonderful to spend some time w/ her.  Thank you sooo much, Girlfriend for takin the time.  It meant alot!  (Beams)

Later on today we head to my Sisters for a few hrs.  Woot!  Get to check out the their new home, and turkey.  lol

I downloaded some pics, so take a look-see!

The best to you and yours.

Shirley!

0 Stuff Spoken / Speak!

Thursday, August 14th 2008

2:23 PM

It's all about me.

Well, another year, another Gynochologist appointment under the belt.  Pun intended.  I gave her a copy of the autobiography.  She was thrilled.  After she reads it, shes going to put it in the waiting room.  Sweet!

We talked about my energy lvl, and my mood swings.  I told her that Im not great at taking my meds at the same time every day, and I miss a day here and there.  She made me promise to start taking em at the same time of day -  everyday, and she pretty much guaranteed Id start feeling better.

I get caught up alot with everything I want to do, and it just overwhelms me.  I dont know why I need things to validate me.  I dont think Ive changed much in that sense over the years.  I started thinking about it, when my sister mailed me a bunch of pictures she had doubles of.  I was like still in grade school in most of the pics.  In every picture, Im wearing something bizarre, or Im striking some pose.  A basic "ham".  It stuck me - Im still an attention seeker.   Im reminded of the Simpsons episode where Lisa is getting attention and Bart freaks out, and starts stomping around shouting "Look at me!  Pay attention to me!"  Ya ...

Going back to the autobiography; Ive made a couple updates, and got an ISBN for it, and within a couple months it will be available through Amazon.  Im soo excited. 

More to come soon.

Shirley

 

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Monday, March 3rd 2008

12:26 PM

There are days ....

  • Mood:
  • Music: nada - news in the background
  • Wearing: gray slacks, blue sweater
  • Watching / Playing Cabal (when Im home)

Ok, a little grocery store rant:  Ive notice that alot of what I want just happens to be on the top shelf.  If the hubby is there, thats cool, if not, Im either, stepping on the bottom shelf and trying to grab, or humbling myself and asking someone who is walking by to get it for me.  I know, its shouldnt be a big deal, its just one of those things that spotlights the fact that although normal (what is that anyway?)  Im still Different, Unique. 

On a good note; we do our groceries at Kroger, and they have new "Shirley Friendly" buggies.  Hah!  They arent as long, and have 2 compartments instead of one deep one.  It is perfect, I love it.  lol  Gawd getting excited about a grocery cart.  lol  Oh!  And we also those eco friendly reusable bags now.   Woot!  Hurray for the Earth!

Movie news:

Curse of the Golden Flower, and Legend of the Black Scorion.  Amazing!



1 Stuff Spoken / Speak!

Thursday, December 20th 2007

4:36 PM

Stop the World, I want to get Off

  • Mood: busy!
  • Music: nada -nearby coworkers
  • Wearing: black skirt, blue blouse - common eh?
  • Watching / Playing tv in the break room

Well, finishing my last week of training.  There is so much to digest, my mind feels like oatmeal.  The money is going to be ok, and the benefits are great, so ...  ya do what ya must do, I suppose.  Bleh!  I swear I want to live in a log cabin in the middle of nowhere growing my own food.  Heh! 

I can catch up more later on the weekend.  4 days off!!  Where has everyone been on Sundays???    Just wanted to give a quick note to say Im still alive.

Hugs and Happy Holidays to all! 

Shirley

0 Stuff Spoken / Speak!

Monday, October 29th 2007

10:15 AM

T.S. made me do it??

  • Mood:
  • Music: nada - listening to nearby coworkers
  • Wearing: beige slacks and top

Great anniversary weekend.  We went to see;  We Own The Night.  Loved it, and then went to Pasta Lunas.  Chicken Marsala Mmmmmm. 

Quick story, though - since Thursday, my back has been really sore on and off - finally last night, I HAD to do something other than a pain pill, so the hubby told me to run and get a heating pad.  Ok, so its nearly 10pm and Im sore, cranky, and he asks if I can go, b/c hes in a "raid" on the game - we play World of Warcraft.  I got a little pouty b/c he wouldnt automatically drop what he was doing and go for me.

I dunno if its a T.S. thing or not, but Im always fighting between massive independence, and wanting to be coddled and to have things handed to me on a silver platter.  Meh.  So, I thought about it, and decided to forgive him.  lol  If I want to be treated like "big" girl, I need to act like one. 

When I told him I had been upset, he said he assumed I was.  lol  He reassured me that if it had been serious, or maybe even outright asked him (yeah, I can do the passive agressive thing like a champ) obviously hed drop what he was doing if I needed him. 

So hhmmmm something to think about. 

 

10 Stuff Spoken / Speak!